About SFRD
Building a national ecosystem of hope, care, and collaboration for India's rare disease community.
Our Story: A Mission Born from Necessity
The Saba Foundation for Rare Diseases (SFRD) was founded to address a critical, silent gap in India's healthcare landscape. For millions of families, the journey with a rare disease is a "diagnostic odyssey"—a lonely, confusing, and often decade-long search for answers. Witnessing this struggle firsthand, we knew a new approach was needed.
SFRD was established not just to be another organization, but to be the central connecting thread—a national hub designed to weave together the fragmented parts of the ecosystem. We believe that by connecting patients to doctors, doctors to researchers, and everyone to a supportive community, we can dramatically shorten the path to diagnosis and create a new standard of care.
Our Guiding Principles
Our Vision
To create an integrated, nationwide ecosystem where every rare disease patient in India has a clear, supported, and accelerated path from initial symptoms to diagnosis, care, and long-term support.
Our Mission
To Connect patients with resources, Collaborate with a national network of experts, and Champion the cause of the rare disease community through awareness and policy advocacy.
Meet Our Leadership
The National Secretariat is the engine of our mission, led by a dedicated team of professionals.
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Executive Director
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Head of Partnerships
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Comms & Advocacy Mgr
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Patient Coordinator
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Admin & Finance Officer